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Caregiver Resources

Kathleen Negri was recommended to our family during a challenging time of transition in our lives. As the progression of Alzheimer’s required further attention to Mother’s legal affairs, Kathleen also uncovered distressing facts regarding Mother’s personal and financial safety. Kathleen’s extensive experience in the field of Elder Law, her compassionate and gentle attitude with Mother, and her efficient professionalism were invaluable during this difficult and complicated journey. With Kathleen’s advice and support, we were able to use our energy and time on the care of Mother during her last months, for which we will always be grateful.

Priscilla

Alzheimer’s Association, a national network of chapters, is dedicated to advancing Alzheimer’s research and helping those affected by the disease. The Association also provides education and support for people diagnosed with the condition, their families and caregivers.  24-Hour Helpline: 800-272-3900. www.alz.org (search “in my area”)

ALZwell Caregiver Support helps people who are caring for individuals with Alzheimer’s Disease and related dementias to improve quality of life by providing practical information on the diagnosis, treatment, care and management of the disease. www.alzwell.com

American Association of Retired Persons (AARP) offers many free pamphlets and caregiver help in its caregiving resource center. www.possibilities.aarp.org

Eldercare Locater is a public service operating in conjunction with the U.S. Administration on Aging that provides referrals to local community agencies for home care, respite services, long-term care, adult day care, senior centers, legal assistance, home-delivered meals, healthy aging and transportation. Phone: 800-677-1116. www.eldercare.gov

ElderCare Online provides an online community where supportive peers and professionals help caregivers improve quality of life for themselves and their aging loved ones. Whether you are caring for a spouse, parent, relative or neighbor, this site is committed to providing senior resources, home health care advice and an online community where supportive peers and professionals help caregivers and care receivers improve quality of life. www.ec-online.net

Family Caregiver Alliance/National Center on Caregiving offers programs at national, state and local levels to support and sustain caregivers. FCA is a public voice for caregivers, illuminating the daily challenges they face, offering them the assistance they need and deserve, and championing their cause through education, services, research and advocacy. www.caregiver.org

Meals on Wheels of America provides hot, nourishing meals to elderly and disabled persons who are unable to provide meals for themselves. The meals, daily contact by caring volunteers, and professional case management allow frail, homebound persons to remain in their own homes. www.mowaa.org

National Council on Aging is a national network of organizations and individuals dedicated to improving the health and independence of older persons. The web site includes many publications of interest to caregivers. www.ncoa.org

National Hospice & Palliative Care Organization (NHPCO) is committed to improving end-of-life care and expanding access to hospice care with the goal of enhancing quality of life for people living with a life-limiting illness and their loved ones. NHPCO can provide information on hospice and help people locate a hospice or palliative care provider in their area. www.nhpco.org

National Parkinson Foundation helps caregivers navigate the emotional, financial and physical challenges that you may experience while caring for someone with Parkinson’s. www.parkinson.org

Rosalynn Carter Institute for Caregiving promotes the mental health and well-being of individuals, families, and professional caregivers through research, education and training. Its focus is on generic caregiving that pertains to all caregivers across various illnesses and disabilities; incorporation of both lay and professional points of view; and collaboration among front-line caregivers, academicians and students to improve the caregiving process. www.RosalynnCarter.org

Today’s Caregiver magazine includes up-to-the-minute advice on topics such as incontinence, grandparent caregiving, mobility, Alzheimer’s, cancer and ALS caregiving, as well as interviews with celebrity caregivers. The magazine produces The Fearless Caregiver book and conferences and hosts an online caregiver community.www.caregiver.com

Well Spouse Foundation is an association of spousal caregivers who form friendships with other caregivers in similar situations. www.wellspouse.org